When Jason switched to his new family physician one of the first things she said was that there was no way we could have children while he was in such an early recovery phase. As frustrating as it is to be told what we are allowed to do as adults I recognize the wisdom of this advice. I can only imagine how exhausted parents must feel when dealing with a spouse with TBI and children. I struggle to balance our life and we have no children and I control my own work schedule! There are some parents out there doing some amazing things. Recently a few posts about how to cope as a child in this situation have come across my desk and I wanted to share for those that find themselves in this position.
This beautiful letter was posted on Brainline by Janna Layde to kids like her with a parent with TBI.
Seven Truths – the ripple effect of TBI lists some of the realities that parents need to be aware of.
Sticking with this week’s theme of things I know nothing about….my heart goes out to those teachers that are going to have their life touched by traumatic brain injury in their kids this year. I think it’s really important that teachers are given information from parents about how their child shows fatigue and symptoms and what accommodations might work for them or have worked in the past. I know nothing about being a teacher but I was pleasantly surprised to find quite a few resources. Here are some of the best I looked at,
A Fact Sheet for School Professionals
The Transition from Hospital to Community
Reintegration of Students with Traumatic Brain Injury
Watching Jason live with a traumatic brain injury has been saddening and he has the ability to understand what is going on most of the time. I can’t imagine being a parent supporting a child with a brain injury. As such, as with yesterday’s post I won’t try to imagine what would be good advice but provide some references to help guide the start of school for you.
Make sure you understand the requirement for rest.
Check out the Parents’ Guide listed on Brainline. They’ve also posted this great video with ideas for making school more manageable.
Make sure you have an understanding of the varied symptoms that can occur so you can find help early.
Learn to advocate for your child! They are going to need your help more than ever.
With September upon us I can’t help but think of school and fresh starts. My heart goes out to anyone starting school and suffering from a traumatic brain injury or post concussion syndrome. These facts and figures from the Brain Injury Society of Toronto indicate that 30% of all traumatic brain injuries are sustained by children and youth, and is the leading killer and disabler of Canadians under 40. This would indicate to me that there are a lot of students returning to school this year with some pretty big obstacles in their life.
At a post secondary level there are a lot of accommodations that can be made to help with schooling. We were fortunate enough to be past this stage of our life when Jason sustained his injury. Rather than imagine how it would have felt I’d like to refer you to some links to help plan your schooling:
Here’s a video about why it’s a good idea to touch base with disability services post injury.
Not sure what help you might benefit from? Here are some ideas from Brainline.
I was stunned by the comprehensiveness of this page by Niagara College – check out what your school knows about TBI, with the prevalence of these injuries it’s very likely they have some ideas for accommodations.
For our readers – how did you cope with your brain injury while in school?